Fibromyalgia Support Group for Surrey and Sussex

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Invitation to Charity Launch
from Clare Palmer
See Report of Event at the bottom of the page

As some of you are aware we are in the process of setting up a new charity, 'Research For Life'.

The charity's aims are to raise awareness and funds in certain areas including:

  • Diseases of the central nervous system (such as Fibro, M.E., depression, spinal cord injury, Alzheimer's disease, chorea)
  • Diseases of the body (including diabetes, cardiovascular disease and cancer)
  • Psychotic disorders
  • Infectious diseases
  • Nutrition
  • Obesity
  • Development of new diagnostic and therapeutic interventions
  • The relief of sickness and the preservation of health. Initially some of the funds will be to support cutting edge biological research, of the type we want to see take place, into fibro and M.E.; as I know you are aware the funds for such research are incredibly limited. As well as raising funds, (which will I hope means a new study either at the end of the year or very beginning of 2010 for M.E., fibro), the charity will be raising awareness of the relevant illnesses and I will be organising talks around the country. They will be with a variety of very knowledgeable speakers and the topics will vary depending on the group.

    The idea is, the more talks we provide, the more awareness we raise and in effect, the more money we raise and so the Research can be targeted towards EFFECTIVE treatments.

    I am holding a Charity Launch Party on Sunday 6th September 2009. (This will in the future be our Official Awareness Day.) It is a Garden Party with a live Jazz Band. Gates open at 2pm and the afternoon will finish at 6pm. Tickets are £6 per person. There will be drinks and Cream Teas available to buy throughout the afternoon.

    I would absolutely love to offer everyone Free Entry but of course it is a Charity Event and unfortunately just not possible. I am, however, able to offer 20 complimentary tickets on a first come first served basis.

    If you would like a ticket please feel free to contact me at clare.palmer@researchforlife.co.uk.

    Butlers Farm HouseThe venue for the Garden Party is:
    Butlers Farmhouse,
    Herstmonceux
    East Sussex
    BN27 1QH
    butlersfarmhouse.co.uk

    Directions: From the centre of Herstmonceux village, Take the road (A271) towards Bexhill. Having left the village take the first turn on the right, signed Herstmonceux Church (Church Road). Go down Church Road for half a mile then take a right turn at Butlers Lane (Opposite Flowers Green Plants)
    Butlers Farmhouse will be found a quarter of a mile down Butlers Lane 300 yards after a sharp left hand turn. Free Car Parking Available

    I really really appreciate all the support I receive from you all and I am sure in time with the Technology now available that huge differences can be made.

    Many thanks again for your support and I look forward to seeing lots of you for an enjoyable afternoon in Herstmonceux.




    Further Message from Clare

    Firstly I'd like to say a huge thank you to you all for all your support and kind messages, it means a great deal to me!

    As you all know, Research For Life is holding a Garden Party on Sunday 6th September. The aim is to raise awareness about the cause and also money to get us started towards our first objective................a Fibro/M.E. Study.

    I am writing to ask if any of you have any items you would be willing to donate to the day, it doesn't matter how big or small.

    I need items for:
    Tombola, i.e. bubble bath, cosmetics, candles, soft toys
    Raffle , bottles, chocolates, hampers, etc
    Bigger items for an auction

    ALL help and donations are extremely gratefully received, and literally everything, however big or small will make a difference.

    If you are able to donate please message me, I am more than happy to collect.

    Many thanks again
    Hope to see lots of you there on the 6th
    Clare x


    Report on the Launch Event

    The Research For Life Launch was a great success. Over 80 people enjoyed an afternoon of Jazz at the beautiful surroundings of the Butlers Farmhouse Garden in Herstmonceux, East Sussex.

    The net sum of cash, cheques and pledged donations reached £850.

    There have been enough goodies / materials left over to enable us to raise extra funds at future events. The next event will take place on Sunday 20th of September. Research For Life will also be holding another Fund Raising Evening before the end of the year.

    It is expected that these events will generate enough funds to enable the RFL Charitable Trust to have enough money required to enable it to achieve its Charity Status.

    I would like to offer my personal thanks to everyone who worked so hard and contributed to the success of the Launch.

    Kindest Regards
    Clare Palmer

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