Fibromyalgia Support Group for Surrey and Sussex

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Juvenile Fibromyalgia

It is not commonly known that FMS can affect children and teens as well as adults. What may be considered “growing pains” might in fact be fibromyalgia, especially if the child complains of having difficulty sleeping. If you have a child that you suspect might have fibromyalgia do please contact our Development Officer by phoning 01403 255450 or email her.

Fibromyalgia Support Group for Surrey and Sussex - FORUM launches start of support for Children, 4th Aug, Horsham FORUM launches start of support for Children

4th Aug 2007 saw the launch of services for children with Juvenile Primary FM.

Fibromyalgia Support Group for Surrey and Sussex - Some Word documents about Children with Fibromyalgia Some Word documents about Children with Fibromyalgia

  1. Juvenile Primary Fibromyalgia Leaflet
  2. The following 4 articles are from the National Fibromyalgia ssociation (USA) website and can be viewed there
  3. Juvenile Fibromyalgia
  4. How Can I Help My Child with Fibromyalgia?
  5. A Cognitive-Behavioral Approach in the Treatment of Children and Adolescents Diagnosed with Fibromyalgia
  6. Parenting a Child with FM

Fibromyalgia Support Group for Surrey and Sussex - Juvenile Primary Fibromyalgia Power Point Presentation Juvenile Primary Fibromyalgia Power Point Presentation


Websites about Children with Fibromyalgia

Fibromyalgia Support Group for Surrey and Sussex - Young Fibro Mites Young Fibro Mites

Forum For The Help, Friendship & Support That Any Young Sufferer Needs

Fibromyalgia Support Group for Surrey and Sussex - NFA Getting through the Schoolday When You Have FM

Coping at school can be tough when you have fibromyalgia. Sitting on uncomfortable chairs, getting to different classes around campus, and carrying all your textbooks can be a challenge. . . . .

Fibromyalgia Support Group for Surrey and Sussex - National Center for Biotechnology Information National Center for Biotechnology Information

Juvenile Primary Fibromyalgia Syndrome - Review

Fibromyalgia Support Group for Surrey and Sussex - Slow and Steady Wins the Race Slow and Steady Wins the Race

A Kid's Guide to Surviving and Succeeding in School with CFS & FMS. Compiled by a teen with CFS.

Fibromyalgia Support Group for Surrey and Sussex - 
National Institute of Arthritis and Musculoskeletal and Skin Diseases National Institute of Arthritis and Musculoskeletal and Skin Diseases (USA)

New research suggests that adolescents with fibromyalgia are more likely than their peers to experience social problems like isolation and peer rejection, which may result in increased anxiety, social withdrawal and mood difficulties.

Fibromyalgia Support Group for Surrey and Sussex - Mail Article Daily Mail Article on Fibromyalgia

If your teen won't get out of bed, it could be more than growing pains

Fibromyalgia Support Group for Surrey and Sussex - Fibromyalgia in Children - by Miryam Williamson Fibromyalgia in Children - by Miryam Williamson

Until recently, fibromyalgia was considered an adult disorder; children were thought not to get it. . . . . doctors have been paying more attention to children's complaints of pain and are diagnosing FM with increasing frequency.

Fibromyalgia Support Group for Surrey and Sussex - FMS Community FMS Community

Information for Children, Teens and Young adults

Fibromyalgia Support Group for Surrey and Sussex - Fibromyalgia in Children Fibromyalgia in Children

Ashleigh had extreme nausea, chronic fatigue, sore aching muscles, and severe headaches. The bright, athletic then 13 year old was sluggish and in pain. . . . . . .

Fibromyalgia Support Group for Surrey and Sussex - Juvenile Primary Fibromyalgia Juvenile Primary Fibromyalgia

This variant of fibromyalgia appears in adolescents, typically after 13 with a peak incidence at age 14. It is uncommon, but studies indicate that its incidence may be increasing.

Fibromyalgia Support Group for Surrey and Sussex - A Cognitive-Behavioral Approach A Cognitive-Behavioral Approach in the Treatment of Children and Adolescents Diagnosed with Fibromyalgia

Almost all defining physical symptoms are identical to those characteristic of adult FM. Behaviorally, the main difference is that the children/adolescents tend to "overbook" themselves and want to be as active as possible.

Fibromyalgia Support Group for Surrey and Sussex - Recognizing and Coping With Pediatric Chronic Fatigue Syndrome & Fibromyalgia Recognizing and Coping With Pediatric Chronic Fatigue Syndrome & Fibromyalgia

Although CFIDS and Fibromyalgia can occur at any age, even in childhood, it is poorly diagnosed in the young. Children and adolescents frequently have a gradual onset of symptoms. However, the types and degree of the symptoms are similar to that seen in adults.

Fibromyalgia Support Group for Surrey and Sussex - Pediatric Fibromyalgia Pediatric Fibromyalgia

Does Fibromyalgia occur in children? Yes, it is less common, but definitely occurs. Typical age is in adolescence and is more common in girls.

Fibromyalgia Support Group for Surrey and Sussex - A Biased Psycho-Social Evaluation of Ten Adolescents with Fibromyalgia A Biased Psycho-Social Evaluation of Ten Adolescents with Fibromyalgia

Fibromyalgia in teenagers is being increasingly recognized.

Fibromyalgia Support Group for Surrey and Sussex - Co-Cure Reports Co-Cure Reports

Clinical analysis of six cases with juvenile primary fibromyalgia syndrome

Fibromyalgia Support Group for Surrey and Sussex - Cincinnati Children's Hospital Medical Center Cincinnati Children's Hospital Medical Center

Susmita Kashikar-Zuck, PhD, Associate Professor of Pediatrics, specializes in behavioral treatment of children and adolescents with chronic pain.

Fibromyalgia Support Group for Surrey and Sussex - A Pediatric Case Definition for ME & CFS A Pediatric Case Definition for ME & CFS

Redefining CFS in children with comparisons with other disorders.

Fibromyalgia Support Group for Surrey and Sussex - National Fibromyalgia Partnership National Fibromyalgia Partnership

Resources For Young People And Their Parents

Fibromyalgia Support Group for Surrey and Sussex - AYME Association of Young People with ME

Symptoms of ME are somewhat similar to FM. AYME co-operates with us in helping young people.
AYME's paper on Boom and Bust.
Chart for measuring activity.
Sample chart filled in.

Fibromyalgia Support Group for Surrey and Sussex - Tymes Trust The Young ME Sufferers Trust Magazine

'Vision', for young people, families and professionals

So what can be done about it?
The following link shows how some parents and their affected children were able to cope

Fibromyalgia Support Group for Surrey and Sussex - The Pediatric Network The Pediatric Network

Running a Support Group for Youth and their Families


Website for children and young people with disabilities

Fibromyalgia Support Group for Surrey and Sussex - Wellspring Wellspring West Sussex

is an independent organisation set up to provide information, dialogue and discussion with and for children and young people with disabilities, and their parents and carers in West Sussex.

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