Fibromyalgia "Tried and Tested" project
by Caroline Hinkes
 Hello
I am 49 and was diagnosed with Fibromyalgia two years ago. I know that I spent a lot of time and money trying different alternative therapies after my GP told me there was not a lot conventional medicine could offer me.
Two years later, and a bit better, I think it would be really useful to produce a FREE guide on what alternative therapies work and what is less helpful for fibromyalgia sufferers. Obviously, everyone is different but we need to start somewhere....
It would be good if this guide was widely available on Fibromyalgia websites, GP surgeries etc and written by us for people with fibromyalgia.
I have tried to take the hard work out of the project and spent a lot of time researching modalities that have a muti system approach to healing and may actually help us. So I got on the web and contacted eleven companies. To my utter amazement most were very happy to let us try their products for free or at a minimal investment. In return, we include them in the guidebook if we get a good result.
We have had some really generous sponsorship offers:
- Dr Susie Anthony 3 day fibromyagia programme at her stately home in Somerset.
- Supplement and hormone balancing programme produced by fibromyalgia specialist. You can do this at home with a manual and on-line support. We have asked the nutricentre to sponsor us with the supplements
- The Healing codes Unit ( value £800 plus we have been allocated the actress Lorrie Rivers, as a coach, who got better using this system)
- Free sessions of Reverse Therapy
- And 8 others.....
If you want to take part as a tester you will be invited to a meeting at my home. We have been given permission to show a short film by Norah Wickerson ( tackling fibromyagia)
This will be followed by presentations on each of the modalities to be tested with handouts on each one. You will be asked to choose just one. However, if you don't feel drawn to any of them you absolutely don't have to take part.
(If there is something you think is really good for Fibromyalgia and would like to try for the project let me know and I will let you have the template that has generated free sponsorship from ALL eleven companies that I approached) You will need to present the modality at the meeting.
We are hoping that this project will improve the lives of people suffering from fibromyalgia and help others make informed choices about alternative therapies. Saving, time, energy and money.
What to do next:
Please contact me via email at Carolinetraining@aol.com
The meeting will be held on 5th June in Reigate, Surrey. See Press Release
in PDF or as a Word doc.
Together we're better!
Caroline Hinkes
The biggest highlight of the day was probably Ashok Guptas' talk. He gave a great explanation of the condition and how his programme would help. Most people in the room were wanting to give it a try despite at least six other presentations.
Greg, our superfoods expert, gave a lively talk. He had been working with me to design an exact protocol for fibromyalgia and this has been sent to Janet for information. I am trialling this one.
Linda Cohen’s talk went down well and her upgraded tens type machine flew off the table and she has had more calls since.
Lindsey Middlemiss supported the invite along the way and on the day. She also took plenty of pictures we could use in some way.
All the presenters/sponsors were warmly received and it will be interesting to see how everyone gets on with their trials..
It would be good to replicate this in another part of Surrey/Sussex and it may be we write to all those companies currently on the Surrey and Sussex website to see if they want to participate?.
I would be happy to facilitate another event in partnership with the group Committee.
Thank you very much, Caroline, for setting up and managing this project. We look forward to progress reports. Caroline also managed to finish the day with a small surplus which has come into the group’s coffers.. There were several problems with the hall, but despite that it was clearly an excellent event.
Ashok Gupta wrote subsequently:
Thank you for inviting me to speak last week. I really enjoyed it - I think you are doing a great job in testing all these treatments!
I wanted to let you know that the first three sessions of the Gupta Programme are now available on-line. Please do let people know that all they have to do is register on the website, and they will receive e-mail links to the free on-line course. They can also register for it at www.guptaprogramme.com/course.
 
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