All the newest items and links are announced here, the newest at the top of the list.
Jeanne Hambleton outlines plans for conference 26th-29th April 2013 at Chichester Park Hotel
Download booking form here.
Can you guess how many squares were knitted for the challenge?
Join us at Wiston Tea Rooms for a fibro tea party on 15th September 2012
Seminar, Competitions, Lunch and AGM. 27th October 2012. Click link above for all details
Will you knit 5 inch squares for our knitting challenge?
All the FMSSAS eNewsletters can be found here
FMSSAS Special General Meeting
at Age UK Centre, Lavinia House, Duke's Square, Denne Rd, Horsham RH12 1GZ on 1st August at 7pm. See here for directions.
All the latest FMSSAS eNewsletters can be read here
Report by Kelly Thompson
Press release by Jeanne Hambleton
Photographs of the Fibro Ducks Competition by Rebecca Toogood
More Photographs of the Conference by Rebecca Toogood
Fibromyalgia syndrome: management in primary care. A leaflet produced by Arthritis Research UK for GPs about the management of fibromyalgia.
Fundraising pages updated.
Fund Raising Now
Jeanne Hambleton outlines plans for conference 8th-11th April 2011 at Bracklesham Bay
Download booking form here.
Living With Fibromyalgia: A Journey of Hope and Understanding, is now available as a digital download
Myalgic Encephalomyelitis & Fibromyalgia One Day Conference
Sunday 12th December 2010: 10am – 5pm, in London
Rebecca tells of her recovery from fibromyalgia. She offers you her ebook free.
Rebecca tells of her recovery from fibromyalgia. She offers you the first chapter of her ebook free.
Clear the old, bring in the new.
See photos of fibro support members at Wiston
Here you can become a member or subscribe to our eNews
If there isn't a support group near you, why not start one?
Dr Myhill was reprimanded by the Medical Council for helping patients!
In this overview of fibromyalgia syndrome (FMS), we'll explain the symptoms. We'll talk about diagnosis and treatment. We'll also explain the impact fibromyalgia has on lives.
Jeanne Hambleton reports on the Conference which was held 23-26 April 2010
Car Sticker Campaign. Please support it.
Support Dave Chidgey in his Marathon run in aid of Worthing Support Group.
See January's entry. Here is the result of Sian Jeffery's research.
An American site but has lots of help and advice for people on (or in need of) disability benefits
Sian Jeffery is a third year student of Nutritional Science at the CNELM www.cnelm.co.uk.
One of his assignments is to write a report on how sufferers of fibromyalgia view nutritional strategies as part of the management of their condition. He would appreciate your help in this by filling in the form that you can find here.
Could you please fill it in using whatever marking system you like; colour your answers, highlight or underline them, as ‘ringing’ might be difficult on the computer. When it is complete please email it to email@example.com Thank you for your help.
Disability Direct is an online directory and disability website designed to help you find just the right information, support or equipment you need to live your life.
The Worthing group proposes to issue a newsletter each month. The icon is the door of the church where their meetings are held.
Interactive training lecture for medical professionals but of interest to patients!
The National Fibromyalgia Association has launched “Make Fibromyalgia Visible” its newest awareness and information campaign which will bring hope to those suffering and isolated by FM.
Some Christmas Cheer
Powerpoint animation Joyeux Noel
Powerpoint tour of Quebec at Christmas
This is a summary of the talk given by Dr Nina Bailey on 18th Nov on The role of nutrition in Fibromyalgia.
See important notice about this
Monday 21st December - 12.30 for 1pm at the David Lloyd Centre, Romany Road, Worthing BN13 3DL
Ferring Baptist Church, Greystoke Road, Ferring, West Sussex, BN12 5JL on 3rd Tuesday of each month beginning in January 2010, first meeting date will be Tuesday 19th January.
Buy VegEPA at a special price per pot whilst donating 50p to Research for Life at the same time! Enter AU7CKSVG in the Promotional Code box.
AONM is an international interdisciplinary forum for the advancement of nutritional medicine.
23rd-26th April 2010 at Southdowns Holidays Village, Bracklesham Bay, (close to East/West Wittering),
Chichester, West Sussex PO20 8JE
More info here.
ME patients in this area are invited to take this survey.
The award winning Elvis impersonator Marshall King is at the Winter Garden, Eastbourne on Saturday 7 November, for a night of pure Rock ‘n’ Roll magic. See details in link above.
This survey will help in the creation of a unique device designed specifically for people with FM in order to provide you with a more comfortable and restful sleep. Return by Oct 25th.
'Research For Life' report - at the bottom of the page.
At Age Concern, Crawley, Sunday Oct 18th - £5 for 2 courses.
April 23rd-26th at Bracklesham Bay near Chichester.
Caroline Hinkes reports on the progress of the members of her group in their response to various treatments.
Teaching comes easy to this fashion major. It's everything else that's hard.
A moving story of courage and perseverance. On our Spirit & Inspiration page.
'Research For Life', to raise awareness and funds for a variety of conditions including fibromyalgia.
A new way of displaying meetings. A calendar with pop-up information and maps!
Protect your AA and DLA benefits NOW before it is too late.
See also this message from FaceBook and the Benefits page updated..
Survey carried out at Horsham Meeting on 3rd August. Anyone else wishing to complete it may do so. If filling it out on a computer it will be necessary to delete some lines, but I have left them in in case anyone wishes to print first, fill out by hand and submit by post. If submitting by email, please add the completed form as an attachment.
Either way please return to me. By email: Webmistress@fms-sas.co.uk
OR by post to Mrs Stella Bernardi, 42, Woodlands Way, Southwater, West Sussex RH13 9HZ
There will not be a meeting in September as several people are going to be away but it is hoped to arrange something in October. Please check the Meetings page for an announcement.
A new book about FMS/CFS sufferers.
Or you can find it here
Friday 14th August at The Swiss Cottage in Shoreham from 11:30am. If you don’t live too far away, why not join the group?
Keep an eye on this page to check where and when meetings are taking place. There can be frequent changes!
The jump was on 25th July. See the report.
This will be held on Saturday 22 August 2009. It will be in the outer Atrium, in front of Tesco's, Marks & Spencer and McDonalds so it will be seen by thousands of shoppers.
Sybille Ulinski explains the tensing and relaxing of muscle groups resulting in inner stabilisation.
Celebrating six years of service and support for the fibromyalgia community.
Update of classes near the end of the Therapeutic Classes page. Other updates on this page too.
You are invited to become a member and receive reliable information on the latest in treatments, research, and coping advice from experts around the world.
Chris and Richard Reynolds, two plantaholics, are opening their garden,
(35 Wrights Close, South Wonston, SO21 3HD) on
Sunday June 28th , 2.30 – 5.30 pm.
£2 Entrance, Wheelchair access. Refreshments available, plants for sale.
In aid of the Red Cross, Help for Heroes, and Fibromyalgia research.
Even if you are not a garden lover, come and enjoy stunning views and a tranquil location.
Coffee meet-up at Lancing
The Sussex Potter in North Lancing on Friday 26th June from 11:30am. This venue is really nice and gives us an opportunity to sit outside if the weather permits.
Full details of visit in link above (.rtf document).
“To compare the extent to which the national healthcare systems of Europe take the patient and the consumer into consideration in 2009”.
Complementary & Alternative Medicine information service for the public.
Survey about the experiences over the last two years of those affected by the Chronic Fatigue Syndrome.
Group launch 1st June Atrium 1, Guys Hospital, London Bridge, London. See details in link above. (.rtf) and here.
Is there a fibromyalgia personality?
Myofascial Release (Muscle - Fascia - Release) is used for the release of fascia which has become stuck, hardened and dehydrated. Restricted fascia and soft tissues lead to often undiagnosed pain, exhaustion and immune system dysfunctions.
Come on by and join us there.
Fibromyalgia Internet Based Research Online, (F.I.B.R.O) Your help needed! Please participate whether you have fibro or not!
Return visit on 24th June. See details on above link.
Independence at Home is a national charity that helps improve independence, comfort, safety, dignity and quality of life for people with long-term illness and disability by helping towards the cost of adaptations, equipment or other things that are not available from public funds.
World M.E. & F.M. Prayer and Meditation Day
Scheduled for 12 May, 12 noon – 12.30 ~ marking International Fibromyalgia Awareness Day and International M.E. Awareness Day. This event is in addition to the World M.E. & F.M. Prayer & Meditation Day scheduled for noon on Monday 4 May; the regular monthly event which takes place on the first Monday of each month.
Regular participants of the multi-faith prayer and meditation link, will no doubt be familiar with the origins & purpose of the event, but for newcomers, further information can be found at:
World ME-FM Prayer and Meditation Day
Hove Lawns, 25th July 11am. Please support them. See also justgiving.com/fmsjump
Togs4specialsprogs create custom made clothing and accessories for Babies and Children with special needs.
An innovative fundraising scheme that reclaims charges from many existing investment, pension and insurance policies. See the movie and read full details in above link.
The only UK web-site totally dedicated to providing free information on routes that are suitable for wheelchair users throughout the UK.
A wheelchair friendly walk in bluebell woods.
Jaqui Mayes carried out research in 2008 to try and establish links between food intake and fibromyalgia. The results are to be found on her site above and is also available here.
is bravely going to bungee jump to help raise funds for us! The date of the jump will be 25 July. Please sponsor her. Watch this space for more information.
Sign the Petition against Codex Alimentarius unless you want to lose currently freely available herb/vitamin/mineral food supplements.
LINk (Local Involvement Network) is an organisation which promotes Your Voice on Local Health and Social Care.
Beautiful story - received by email and adapted.... (below the links on the Spirit & Inspiration page.)
See details needed.
See flier for full details
Gentle Yoga at Merstham
New Gentle Yoga classes in Merstham near Redhill starting on November 3rd. 11.00 - 12.00 each Monday.
See flier here.
Fibromyalgia Awareness press releases.
Janet Boniface is concerned about the credit crunch affecting our charity
Tonya Ashby's Story about coping with fibromyalgia
2 New Menus
Links to sites about PAIN
Sites with Forums to discuss PAIN
See their website too.
If you are a Carer, this is for you.
World ME & FM Prayer and Meditation Day - The event takes place on the first Monday of every month between 12 noon and 12.30, or at any other time during this day if noon is unsuitable for you.
Pension Service and the Disability and Carers Service join up to form one new agency.
New Award (at the bottom of the page)
The Council wishes to consider the views of residents and stakeholder groups and to do this has commissioned Research For Today Ltd (RFT) to undertake a a special web questionnaire for members of EAVS about the Council's service priorities. If you live in the Eastbourne area please click the link above to access the questionnaire
Thursday, August 9, 2007, Press Release
New Nationwide Surveys Demonstrate Need for More Education, Resources for “Invisible” Pain Condition Affecting More Than Six Million Americans
Mike Hesketh invites you to participate in his CFS/FMS survey and feature in his book.
Mike's Letter of invitation
Research by the University of Surrey
1. Exploring the role of sleep in Fibromyalgia Syndrome
2. Does mindfulness improve sleep quality and quality of life in patients with fibromyalgia?
Power Point Presentations:
1. FMS What is it?
2. FMS SAS Overview of Support Group's activities
3. Juvenile Primary Fibromyalgia